My baby girl’s dummy obsession was a sign of serious disease – now we’re having to shave her hair

A LITTLE girl has a rare disease that causes her to gnaw through a dummy every day.

Sydney Miller, 2, also rips out and chews her own hair, after becoming fixated with biting things.


Her mum, Stacie, said the family have decided to shave the youngster's head.

Due to extra complications, alongside Primrose Syndrome, little Sydney needs to be fed through her stomach.

But her habits have started to cause hair to be tangled in the tube, which raises the risk of an infection.

Shaving her head will stop this risk, with the family also turning it into a positive.

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They will use it as a fundraiser to collect donations for another toddler who has cancer.

Saskia told Edinburgh Live: "One day I noticed a bald patch on her head and noticed she had been pulling strands of hair out.

"Strands turned to clumps and then she started eating the clumps of hair that she pulls out, so we had to make the decision to shave it off.

"The hair Sydney pulls out gets tangled in the peg feed on her stomach that can cause infections so we need to shave it all off.

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"She has a really high pain threshold so she doesn’t feel the pain when she rips her hair out but we need to shave it off quickly so it has been a quick fundraiser."

The 36-year-old said her daughter suddenly changed as she became obsessed with biting.

She was born with Primrose Syndrome, and also diagnosed with horners syndrome, harlequin syndrome, partial agenisis of the corpus collosum, pituitary cyst, bilateral hearing impairment and global development delay.

The family will be shaving Sydney's head on June 3, with a disco and an X Factor star, Saskia, performing.

Stacie added: "With Primrose syndrome, it’s very uncertain what we are going to be faced with as Sydney grows up.

"We have come to the hardest decision ever in her journey to shave what’s left of her long, thick, brown, curly hair off. This is in the best interest for her and it will grow back.

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"By doing this we are helping our girl but also helping someone else’s girl at the same time and so decided to put together a fundraising page for Flora and hopefully bring in that much needed funding that’s still required for her journey."

Find out more information and donate here.


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